Understanding the Conditions... Enhancing Lives.

The National Organization for Disorders of the Corpus Callosum (NODCC) is a nonprofit corporation established in 2002 by professionals, parents and individuals with a personal commitment to understanding corpus callosum disorders.

Our Mission is to to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum and raise the profile, understanding and acceptance of these disorders through research, education, advocacy and networking.

As an organization, we gather and disseminate information about corpus callosum disorders, through this website, publishing booklets, videos, and pamphlets, coordinating an annual conference for families and professionals, and creating a community of support for families and professionals.

 • DCC Conference 2010:  Please join us for the DCC Conference 2010, July 30-August 1 in Santa Clara, California.   read more >>

• Family Partnership Program (FPP)

The NODCC is pleased to announce the launch of its Family Partnership Program  in 2010. The FPP is designed to facilitate geographic connections among individuals and families affected by a DCC. The primary focus of the FPP is to establish state and regional communities with strong leaders and resource families to provide support, information and resource sharing and organization of local activities. The NODCC plans to establish at least 4 active state/regional groups this year with a volunteer leader as the liaison between the NODCC and the individuals/families.

“We have heard from many families that they want to connect with others who are in close proximity and who face similar challenges,” said Donna Doherty, family partnership director of the NODCC. “We have established a model for this program that we believe will help bring together families and allow people to connect more frequently.”

• Notice about DCC Conference 2011

The NODCC plans to launch each regional group when the appropriate volunteer leader is in place. In 2011, the NODCC will not host an annual conference and will help facilitate regional gatherings across the country. The NODCC will also host educational sessions for the newly diagnosed in 2011. The annual DCC Conference will resume in 2012 in San Antonio hosted by a Texas/Southwest family partnership team.

“We are excited about the future of the organization and the connections that our family partnership program can bring,” said Jennifer Little, president of the board of directors of the NODCC. “We know that attending the annual conference can be cost prohibitive every year so by developing strong regional groups and events, we hope those affected by a DCC can get the resources and networking important to enhancing their lives.”  

• “ACC and ME”: Our new children’s book to encourage and teach children with ACC about their condition and to positively embrace their lives.

 Read more or purchase now >> 

• Curious: Mind, Brain, Machine  PBS Documentary featuring discussion on AgCC with Dr. Lynn K. Paul.   watch full episode online>>