Understanding the Conditions... Enhancing Lives.

The National Organization for Disorders of the Corpus Callosum (NODCC) is a nonprofit corporation established in 2002 by professionals, parents and individuals with a personal commitment to understanding corpus callosum disorders.

Our Mission is to to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum and raise the profile, understanding and acceptance of these disorders through research, education, advocacy and networking.

As an organization, we gather and disseminate information about corpus callosum disorders, through this website, publishing booklets, videos, and pamphlets, coordinating an annual conference for families and professionals, and creating a community of support for families and professionals.

Kim Peek

November 11 1951 - December 19 2009 The NODCC mourns the passing of a dear friend and wonderful advocate.  Kim Peek was the inspiration for the 1988 academy award winning film Rainman. In the film, Kim's character is portrayed by Dustin Hoffman. Hoffman's nuanced performance raised the visibility and understanding of autism diagnoses. Although Kim had many characteristics of autism diagnosis as well as rare savant skills, his primary medical diagnosis was agenesis of the corpus callosum (ACC).

Kim and his father Fran were keynote speakers at the DCC Conferences in 2005 and 2007.  Kim spoke passionately about the need for accurate diagnosis and his own frustration about many years of misdiagnosis prior to neurological scanning that revealed ACC.  

Fran Peek, Kim's father and primary caretaker, typically avoided the spotlight. However, at the DCC Conference his story was as powerful as Kim's. Fran's advocacy revolutionized special education and paved the way for parent advocates today. 

The NODCC extends our deep appreciation for Fran's ongoing involvement and shares in the sadness of Kim's passing.

• DCC Conference 2010:  Please join us for the DCC Conference 2010, July 30 - August 1 in Santa Clara, California.   read more >>

• “ACC and ME”: Our new children’s book to encourage and teach children with ACC about their condition and to positively embrace their lives.

 Read more or purchase now >> 

• Curious: Mind, Brain, Machine  PBS Documentary featuring discussion on AgCC with Dr. Lynn K. Paul.             watch full episode online>>