The idea for the NODCC, a national not-for-profit corporation to support families and professionals dealing with corpus callosum disorders, begain at the 2001 ACC Family Conference in Yorba Linda, CA. A year later, the original 14-member board drafted a mission statement and submitted an application for non-profit status. We were incorporated incorporated in October 2002 and received 501c3 (non-profit) status in September 2003.
What does the NODCC do?
We gather and disseminate information about corpus callosum disorders, by creating this website, publishing booklets, videos, and pamphlets, coordinating an annual conference for families and professionals, and responding to family members' calls and emails.
Does the NODCC sponsor research?
Not directly. NODCC funds are used to support the activities listed above. We encourage research by notifying our members of opportunities to participate in new projects and by reporting new findings in our publications and at conferences.
Is the NODCC the same as the ACC Network?
No. The NODCC and the ACC Network are completely separate entities. The ACC Network, a family network established in 1989 by Kathryn and Gary Schilmoeller, is housed in the University of Maine. The ACC Network sponsors many valuable resources, including the Callosal Connection Newsletter and the ACClistserve. For more information about the ACC Network, you can visit their website at
http://www.umaine.edu/edhd/research/accnetwork.htm The NODCC is a free-standing non-profit corporation, directed by a 18-member board of directors representing multiple professions and regions of the country. Although the NODCC and ACC Network collaborate on projects, they do not share funding.
