DCC Conference 2008
See you this summer at the Disorders of the Corpus Callosum Conference 2008 in Cherry Hill, New Jersey (5 miles from downtown Philadelphia) on July 18, 19 and 20.
Conference details and a downloadable registration form are available in the Conference and Events section.
Read more...
Brook & Ian's Run For The Families 2008
To celebrate the First Birthdays of their two amazing little babies...Ian Diedrich & Brooke DeMar, the DeMar and Diedrich families threw a fundraising Fun Run/Walk & BBQ on May 31. They donated all net proceeds to the NODCC - over $7,000! It was a wonderful time and it is their hope this celebration will become an annual event to celebrate Brooke & Ian's accomplishments and highlight the important role that family and friends play in their lives and development every day.
Read more...http://run4families08.googlepages.com/home
CURIOUS, a PBS documentary on selected California Institute of Technology scientists, was produced by WNET in New York with funding from TIAA-CREF and has been aired by PBS stations throughout the U.S. over the last few months. The episode Mind, Brain, Machine features a segment in which Dr. Lynn K. Paul discusses agenesis of the corpus callosum (AgCC).
Dr. Paul is the head of the Corpus Callosum Research Program at Caltech. This program represents the hub of the AgCC Research Consortium, a multisite collaborative effort whose other members include the Fuller Graduate School of Psychology/Travis Research Institute and the University of California in San Francisco.
Click to view the full 56 minute episode
http://www.thirteen.org/curious/episodes/watch-the-full-episode-mind-brain-machine/
Agenesis of the Corpus Callosum (DCC) Texas Support Group
If you live in or around the Houston, TX area, we would like to contact as many interested families or individuals with DCC in the area as possible for meetings or informal discussions where we can share information and experiences. We would llike this to be a learning experience and a source of comfort to individuals and families dealing with a DCC.
For more information please contact James and Becky Nichols at 281-922-5418
j_d_Nichols@hotmail.com or becnichols@yahoo.com
The NODCC Website contains a myriad of educational information, research articles, lecture podcasts, family stories, a resource library and interactive features such as Our Stories, the Family Partnership Program Networking Center and a Community Discussion Board.
We encourage you to become an active participant in this forum, which is designed to be a collaboration between individuals, families and professionals sharing information and emotional support to one another.
We especially need your help in building our Resource Library (located in the Resource Center), which we envision in time will contain thousands of resource referrals throughout the world - what a wonderful gift to those newly diagnosed families!
Send us your reviews on books you believe would be of mutual benefit to the NODCC community, as well as any questions you would like answered in the monthly Professionals Corner. We also want to hear your (adult individual with diagnosis) or your child's story. Imagine how incredible it would be to open up the NODCC website and be able to read hundreds of stories about real people living with disorders of the corpus callosum and to have an instant connection to a virtual community of people who understand and care.
This website is your place to connect and grow. We look forward to hearing from you and welcome your contributions to ensure this website continues to be a leading resource of information, education and community support for people living with a disorder of the corpus callosum.
We wish you and your families the best in health and happiness!
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