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Research on agenesis and other disorders of the corpus callosum (DCC) is being conducted and we hope to learn more and more in the years to come. In the meantime, we know the parents and guardians of those living with a callosal disorder have invaluable information to share with one another.
Our children are unique in many different ways, but there are many similarities as well. A callosal condition is not degenerative, but it also doesn't improve, so our children's brains must continually work on developing new pathways to transfer information.
In essence, this condition is one in which you watch your child's development and seek appropriate developmental therapies if you see he or she is not achieving major milestones such as rolling, sitting, crawling, self-feeding, walking, speaking, or exemplifying major learning disabilities or inappropriate social behaviors.
We encourage you share any valuable tips you've learned in raising your child that could be of help to other NODCC families. We will post them in this section as the year goes by and in time we hope this section will contain of treasure trove of "helpful hints." Please submit your tips here.
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