ACC NETWORK The primary goal of The ACC Network is to promote networking among individuals with agenesis of the corpus callosum (ACC) and other callosal anomalies, their families, and professionals. The ACC Network was started by Drs. Kathryn and Gary Schilmoeller in 1989, shortly after their son Matt was diagnosed with ACC. The ACC Network has received contacts from over 3000 families and individuals with corpus callosum disorders, representing over 40 countries. The ACC Network publishes a newsletter and sponsors a listserve.
If you are interested in more information about joining and/or supporting The ACC Network, please contact:
The ACC Network
5749 Merrill Hall, Room 118
The University of Maine
Orono, ME 04469-5749
USA
Phone: (207) 581-3119
FAX: (207) 581-3120
E-mail: UM-ACC@maine.edu
Website: http://www.umaine.edu/edhd/research/accnetwork.htm
CORPAL A support group in the United Kingdom for the families and carers of those with Agenesis of the Corpus Callosum, and/or Aicardi Syndrome
Registered Charity Number : 1086019
Website: http://www.corpal.org.uk/
GERMAN SPEAKING GROUP A support group in Germany who have both a website and discussion group in support of families of children with disorders of the corpus callosum.
Website: http://www.balkenmangel-kinder.de
http://de.groups.yahoo.com/group/Balkenmangel-Kinder
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